Trey was born on June 24, 2011 and was diagnosed with ALCAPA, a very rare congenital heart defect, on September 12, 2011. This is the story of our journey.
Please feel free to email me (Randi) if you have any questions or comments: treyheart@gmail.com
Please excuse any misspellings or grammatical mistakes. I'm usually writing from the hospital on my netbook while my mind is just running....

Wednesday, November 9, 2011

Day 15 Post MGH / 28 Post Inova - Home Nurse

Today our home nurse, Brandis, came to see Trey.  He had a good day.  No incidents of throwing up and he gained some weight.  On the 2nd of November he was 15 lbs, 10 ounces.  In one week he gained 4 ounces which is normal.  His heart rate was normal at 124 bpm and respiratory rate was normal for him, 42.  The only problem is that he is now not having anything to do with the bottle.  He just plays with it and doesn't eat.  This weekend I'm going to go and try get some new bottles to try to see if he will take other types of bottles. 

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