Trey was born on June 24, 2011 and was diagnosed with ALCAPA, a very rare congenital heart defect, on September 12, 2011. This is the story of our journey.
Please feel free to email me (Randi) if you have any questions or comments: treyheart@gmail.com
Please excuse any misspellings or grammatical mistakes. I'm usually writing from the hospital on my netbook while my mind is just running....

Saturday, November 5, 2011

Day 11 Post MGH / 24 Post Inova - Off Methadone

So today was Trey's last day on Methadone and it went ok.  He was mildly fussy but not too bad.  There were some times during the day that he didn't seem very consolable but Daddy and him worked through it.  He was not thrilled with the bottle today though.  He wanted nothing to do with it so most of his feeds were total tube feeds today.  He didn't throw up at all. So all in all... not a bad day!

Bryce went to Grandma and Grandpa's house to spend the night and Mommy and Cole went into Baltimore city to visit some friends.  We met up with mommy's childhood best friend, Brooke.  Her family and she were in town for Arenacross, dirtbike racing.  Her middle sons both race and were racing at the Baltimore Arena.  Her parents were also in town and it was great to see them as well.  Brooke and I met up together 2 years ago but I haven't seen her parents in about 13 years.  We went to lunch at the Rusty Scupper and then hung out at their hotel for awhile.  Cole loved playing with her 2 sons, 7 years old and 5 years old.  He hit it off with them right away.  He loved running around the hotel lobby with them.  We then head over to the Arena and watched the races.  Cole loved it.  He was yelling out, "go, go go!"  The pros were pretty impressive, they jumped those bikes super high and Cole went wild!  It was a really long day and we ended up getting home around 10 pm.  Cole was incredibly tired.

Tomorrow is Trey's last day of Valium and then he'll narcotic free!

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