He also is getting his blood transfusion right now. Daddy's blood was a match and it is going into his central line. Before they gave him his blood they changed the dressing on his central line. The transfusion will last about 4 hours and he is getting a total of 130 ml of blood. Thank you all to everyone that offered to give blood to Trey. You are all so incredibly amazing!
Trey getting the dressing of his central line changed
They are talking about moving us out of the PICU tomorrow to the cardiac unit across the hall. This is great news for Trey. That means he is stable and improving. For me though, I think I might go through PICU withdrawal! I know the nurses and doctors in the PICU. I trust them with Trey. I know that when I go home at night he will get great care. I feel comfortable leaving him here. I feel comfortable asking questions and they have been so nice to talk to. They do a great job at taking care of Trey, while also keeping me sane. I'm sure the nurses on the "other side" are fine too - I just don't know them and they dont' know Trey. Plus, they have both single and double rooms in the step down unit. Most likely we will have a double room because Trey is not in isolation. They try to keep the single rooms for children that are contagious and have to be in isolation. We will probably be paired off with another cardiac child. Not necessarily looking forward to that because when/if he starts nursing again there won't be much privacy. Yes, even thinking about moving to a new room now is starting to get me a little anxious.
They were going to try to wean him off of the oxygen today but he had some episodes of tachypnea or rapid breathing. His alarms went off a few times this afternoon, they are currently set to go off if he takes 70+ breaths a minute, but they seemed to have stopped now. So they are going to keep him on oxygen for a bit longer to see what happens. If his breathing stays normal tonight (which it has been) they will take him off oxygen. Yet one more thing coming off of him!
They're still thinking we'll be here for about another week or so. If everything goes smoothly with the feeds and the weaning of the methadone and morphine, they're thinking discharge would be sometime around October 12. I'm looking forward to getting back to a "normal" routine but a little afraid of getting all of the boys back together again! We're going to definitely be more diligent about making sure Cole is extremely gentle around Trey. No more laying on him to give him some loving!
Trey getting new sheets and gown