Trey was born on June 24, 2011 and was diagnosed with ALCAPA, a very rare congenital heart defect, on September 12, 2011. This is the story of our journey.
Please feel free to email me (Randi) if you have any questions or comments: treyheart@gmail.com
Please excuse any misspellings or grammatical mistakes. I'm usually writing from the hospital on my netbook while my mind is just running....

Monday, September 19, 2011

Day 7 - 11:25 am - Off ECMO!

Off ECMO (for now) and working on his heart.  He's been off ECMO for an hour now.  Will update again when they are done.  Apparently they don't usually let parents back when they do this but they let me stay.  I want to be able to tell him EVERYTHING when he is older.

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