Sometime overnight Trey got his own little gown. It's quite adorable!! He also seems to really enjoy looking at the mobile that Child Life lent him. He was really watching it intently this morning.
He had another echocardiogram this morning and the cardiologist came in to give us the results. He said that his heart looks a tiny bit stronger on the echo, which is a great sign! His ejection fraction went from 23% (4 days ago) to 30%! Again, that's the percentage of blood that is being pumped out of his heart with every pump. You don't want that number to be above 80% and "normal" is anywhere between 60% and 70%. The cardiologist also mentioned that his EKG right now reads similar to an EKG of someone that had a heart attack. Poor kiddo - he has an EKG that could be mixed up with an older man that had a heart attack!
Also, I mentioned the other day his BNP number was 1568 (anything over 100 is a sign of heart failure) but what I failed to realize that when he was admitted on September 12, this number was 3000! So this number has had a significant drop! The cardiologist said today that he expects Trey to go home on about 4 different kinds of heart medications but he thinks that by the time Trey is 3 he will most likely be off all of those medications. So, while the beginning of this journey has been really scary, after a few years this fix may cause him to have a complete recovery, which is great news.
My mother came to the hospital with me today to hang out with Trey for the day. We both got to hold him, which was really nice. He stayed awake for most of the afternoon, which is good - he kicked his feet and moved his arms while he was awake so that's great exercise for his heart!
Trey and me
Trey and my Mom
Oh... and other important news... Hannah was Trey's nurse today! It was so great to share such great milestones with her today... 30% echo and a poop with no blood in it! I forgot to mention that too... Trey started having poops again yesterday, which is great (especially for him!). He did have a diaper that tested positive for blood yesterday, which isn't too surprising considering he most likely had some damage in his intestines... but today all of his diapers tested negative, which is a good sign! They're planning on starting feeds on Monday and as long as everything goes smoothly, we're looking to be discharged in about 2 weeks from now (that's if everything goes according to plan though... which, you know... doesn't always happen!).