Trey was born on June 24, 2011 and was diagnosed with ALCAPA, a very rare congenital heart defect, on September 12, 2011. This is the story of our journey.
Please feel free to email me (Randi) if you have any questions or comments: treyheart@gmail.com
Please excuse any misspellings or grammatical mistakes. I'm usually writing from the hospital on my netbook while my mind is just running....

Saturday, September 24, 2011

Day 12 - 9:45 am - Stressed

I feel a wreck.  Today I'm not going up to the hospital.  This will be the first day ever, since he was born, that I haven't spent with Trey.  Not only that but they are planning on extabating him today and I won't be there.  Instead I'm going to an activity with my other boys.  This summer we participated in something called "Park Quest."  The state of Maryland held fun challenges at 24 of their state parks for families to complete.  If you completed 10 of them your team was invited to the finale.  We did 9 out of the 10 quests while I was still pregnant in May and June.  We completed the last one over labor day weekend and the finale is today.  Bryce has been working towards this with us all summer.  He talked about it all the time.  There is no way that I can miss going to this with him.  But my stomach is a wreck about not going to the hospital.

Please don't get me wrong, I'm really looking forward to spending the day with my two other sons (they are 2 and 7).  I just hate that I'm going to miss such a big day at the hospital.  Trey's grandparents are all going down to visit him today so it's not as though he'll be alone.  It's just ugh...  So big prayers for him today.  That he does ok with extabation (although there is no guarentee it will work - it may be too much on his heart and they will have to intubate again) and also for me so that I can enjoy this day with my two other sons.

Check it out... Park Quest Maryland (click here)

1 comment:

  1. (((hugs))). I pray that the extubation is successful today! You know I understand your feelings today. Go and enjoy time with the boys. They will love having you with them. I'm sure Trey will be well taken care of and loved on today. And when you visit tomorrow, hopefully you'll be able to see more of his little face, without that tube!