Trey was born on June 24, 2011 and was diagnosed with ALCAPA, a very rare congenital heart defect, on September 12, 2011. This is the story of our journey.
Please feel free to email me (Randi) if you have any questions or comments: treyheart@gmail.com
Please excuse any misspellings or grammatical mistakes. I'm usually writing from the hospital on my netbook while my mind is just running....

Tuesday, September 27, 2011

Day 15 - 5:00 pm - KO for the count!

This is how Trey has looked since he got his medicine last night...

Sleepy Baby!  Trey has not woken up since they knocked him out last night!  The nurse turned off his sedation drips about an hour ago to try to get him to stir some and when he wakes up they will turn them back on again slowly so that he doesn't have a bad withdrawal from them.

He has been having PVC's (premature ventricular contractions or early heartbeats) for most of the day.  Apparently they started overnight but became more of a trend around noon.  They did an EKG on him (which he slept through!) and the doctors don't seem too worried about it.  It's just something that they are going to keep on eye on and see if it gets any worse.  The internet is a great thing but sometimes you learn WAY too much!  I researched PVC's on Google and noticed that a cause can be a prolapse of the Mitral Valve.  This sounded familiar and I remembered Dr. Shen mentioning something about Trey's Mitral Valve and that sometimes with this condition they have to be replaced.  The Mitral Valve is the valve between the left atrium and left ventrical of the heart.  By the way, the left side of the heart (especially the ventrical) is the side of the heart that pumps oxginated blood througout your entire body.  Anyhow, I bounced the Mitral Valve prolapse off of Dr. Collazo and he said that while Trey's valve showed to be a little leaky, overall it was working ok.  He then mentioned that PVC's can be very common in a heart that is recovering from surgery.  It didn't seem surprising to him that Trey was having some.  So basically, now it is something they are aware of but not too worried about.  

My dad came up to visit today and we went to lunch in the cafeteria.  The food here is actually not too bad. They supply 2 parent trays free of charge and all you have to do is call to order your food.  They then deliver it to your room within 45 minutes.  Not bad!  So far I've enjoyed their pizza, beef tacos, chicken fajita burritos, chicken alfredo and oriental chicken salad. They also have incredible chocolate cake, churros with vanilla ice cream and baklava.  They also have amazing smoothies in the cafeteria!  I know, I'm odd.  I actually enjoy hospital food... airline food too!  I think it's because it's just served to you.  No cooking, no serving and it's different all the time!

Well, Trey is about ready to get his 2 month vaccinations (we got behind with all of his hospital stays and such).  Poor kid needs 4 of them. Seriously... this poor child!  How many more times can we poke and cut him?!

Oh yeah - and I forgot to mention... he had 2 surprise visitors yesterday.  Hannah and one of his first nurses, Savannah, came to visit us.  It was nice to talk to them and they got to see Trey without tape all over his face for the first time!

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